This just in: My mom's doctor now thinks she may have PSP - progressive supranuclear palsy. She simply hasn't responded well to any of the drugs she has been on, particularly Namenda and Exelon. In fact, they made her far more befuddled. I wonder, particularly as so many of the other symptoms, like aphasia and incontinence, are very much FLD.
At first, we were thrilled, thinking that, perhaps, here was a diagnosis far more bearable, treatable and easier than FLD. But no...PSP actually may result in a total loss of speech and mobility far earlier, though she will never have a total dementia, which is good. On the other hand, if she's immobile, wouldn't that be, to her, far worse? To completely realize the situation?
The upshot is her doctor wants someone more familiar with PSP to look at her, and that means somebody at a place like the Mayo Clinic or at least in a major metropolitan area. And guess who lives in a metro area? Me. So mom may be moving in with me for a while.
Details to come as I digest them. Meanwhile, has anyone else come to FLD after a misdiagnosis? Something I'm beginning to understand is that there may not be a black-and-white diagnosis -- it may in fact be a little of this, a little of that.
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