Monday, November 30, 2009

Diagnosis confusion, continued

So, to continue -- because Mom was so unresponsive to the various drugs her doctor tried, she now thinks she may have PSD. At least, that's what I'm getting via my Dad. I can't manage to actually talk to the doctor, so I don't completely understand this potential diagnosis.

Either way, the existing neurologist is shifting my mom's case -- without giving us a referral other than "find a Mayo Clinic or metro-area doc who sees these kinds of things" so we were left scrambling to find a new doc. With the help of Lord Google and a neurologist friend, I located a specialist in PSP who is only about an hour or so of a drive from me. So Mom will come back with me in February, and then see this doctor, and then have whatever else test may come along, and stay with me for a while, to give my dad a break.

How I will cope with her and my two primary-school-age kids, I do not know. I certainly can't leave her alone. I'm concerned about her going up or down stairs to sleep and bathe. Plus according to my dad, she is deteriorating further mentally -- he found her standing in the shower, just waiting there, not knowing quite what to do.

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